Sunday, June 10, 2012

Inclusion Body Myositis (IBM)


I’ve been trying to write this blog for a year. Last year I was diagnosed with Inclusion Body Myositis (IBM).   It is a somewhat rare affliction.   According to some experts, IBM affects about 15 people in 100,000. It is apparently both an inflammatory and a degenerative muscle disease.  The cause is unknown and there is no cure.  Falling down is what we do.



I continue to garden with help.  I continually search for tools to make gardening possible for me. 

There is so much more to explore in the world of gardening.  As I reinvent myself, I plan to post highlights and lowlights of my gardening world.  I hope you’ll come along for the ride.



Pictures from Hortulus Farm, Garden and Nursery  a non-profit foundation in Wrightstown, Pa. Bucks County. The reasonably priced plant sales’ profits go towards preserving the beautiful grounds and gardens.  It was definitely worth the trip.


10 comments:

Tracy Brant said...

Oh, dear blog friend, I am so sorry to hear the news of your diagnosis. It must so frustrate your gardening urges. But, you are right - there is a lot to explore in the world. Now you have a new perspective. Look what Roger Ebert has done, now that talking is no longer his trade. He's built one of the top blogs in the world. I look forward to reading your reinvention.

I haven't done a good job of keeping up with my blog reading lately, let alone writing. I moved into my childhood home and have been renovating my mother's terribly overgrown yard full of perennials and invasives. But I will keep a close eye on your blog from now on.

And thanks for the link to Hortulus Farm. I see a daytrip in my future.

--Tracy in Reading PA

Marie said...

Thank you, Tracy, for the well wishes and encouragement. I appreciate it very much.

Good luck with the garden renovation. I'm sure it will be great when done!

Mary Junriza Cimeni said...

Hi there,

This is such an awesome blog. :) I love the views of the gardens, they make me feel serene and comforted. You are right. There is a lot of things to explore in this world and I am very glad you do such blog to let people see the things you have explored.

Keep it up. Do not falter though. a lot of people are suffering from myositis, most of them are postive in life like you. You may want to connect with them at http://www.myositissupport.org/. It is only one of the 30+ support communities of rare disease powered by bensfriends.org.If you need help, information, and support regarding myositis, please feel free to drop by the site. :)

Mary

Marie said...

Thank you Mary. I am so glad you enjoy the blog. I appreciate the link to the myositis support org. I've only given it a short look but I know it will be very helpful.

Shyra @ Outdoor Sheds said...

I am sorry about your diagnosis. I haven't heard of IBM before. I will surely pray for your health.

Marie said...

Thank you Shyra.
I sincerely appreciate your concern and prayers.

Glycine blanche said...

Très bel endroit. Merci pour la visite. Bonne journée.

Marie said...

Glycine, Merci bonne journée à vous.

A1 Chandigarh said...

I love this plant and have lots in various parts of my shady back yard. I deal with the disappearing foliage by deploying annuals, containers, and ferns. This is a great one for seeding itself randomly around your yard. Delhi Flowers

دردشة ومنتديات عراقنا said...
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